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Where people know your name
The family at the top of the mountain. Skiing is a winter activity we can all do together. Skiing earlier this winter at our nearby ski hill where we have been developing our sit skiing skills....
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A different kind of independence
Deane and his sister arrive for drumming class. They make a great team. It happened by chance. I’d love to say it was a thoroughly researched, well-planned and perfectly executed piece of parenting,...
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Happy 16th Birthday Deane!
You’ve changed my world in so many great ways. Love you Dude.
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Looking into the future
A young Deane with Raptor player Amir Johnson. He remains a huge fan. It isn’t a conscious thing. It’s just become a habit, a form of protection against disappointment. Walking by displays for service...
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Saying thanks
Team Deane Machine – apres ski People don’t say “Thank you” enough. I don’t say thank you enough. Stopping to acknowledge something someone has done for you makes the world a kinder and better place,...
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Dreaming of a dog
Deane and Dad with Jack who first revealed Deane ‘s love of dogs. Deane loves dogs. He reaches over the edge of his wheelchair tray to pet any dog that walks by. He calls out to sit on the floor to...
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Growing up by appointment
“You are doing really well.” The words hung in the room. I wasn’t sure how to respond. It was a rather unexpected comment as the doctor was getting up to leave. It was the end of a three hour clinic...
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Getting healthy again
An exception to ICU and COVID protocols, we all had a chance to be together before Deane’s intubation Deane was supposed to be at camp this week, hanging with his friends, chatting with the cute...
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There’s a lot of time spent doing nothing in hospitals. Don’t get me wrong, I’ll take that any day over hurried action. In a hospital, that usually means something is going very wrong. Obviously, the...
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Out of the ICU
45 days. Two hospitals. Three ambulance rides. Three collapsed lungs. Four bronchoscopies. Two intubations. One tracheostomy. A bowel infection and countless tube insertions, medicine alterations,...
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